{"id":9,"date":"2026-07-12T14:54:12","date_gmt":"2026-07-12T14:54:12","guid":{"rendered":"https:\/\/julieelmquist.dk\/?page_id=9"},"modified":"2026-07-12T17:10:59","modified_gmt":"2026-07-12T17:10:59","slug":"livet-med-fop","status":"publish","type":"page","link":"https:\/\/julieelmquist.dk\/?page_id=9","title":{"rendered":"Livet med fop"},"content":{"rendered":"\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Forestil dig en sygdom, hvor kroppen langsomt bygger et ekstra skelet rundt om sig selv.<\/p>\n\n\n\n<div class=\"wp-block-media-text has-media-on-the-right is-stacked-on-mobile has-custom-grundfarve-1-background-color has-background\" style=\"grid-template-columns:auto 44%\"><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\">Hvad er FOP?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Fibrodysplasia Ossificans Progressive \u2013 ofte bare kaldet FOP \u2013 er en af verdens sj\u00e6ldneste genetiske sygdomme.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ved FOP bliver muskler, sener og bindev\u00e6v gradvist omdannet til knoglev\u00e6v. Kroppen reparerer sig selv forkert og selv sm\u00e5 skader kan medf\u00f8re nye knogler.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sygdommen p\u00e5virker ikke kun kroppen, men ogs\u00e5 m\u00e5den man lever, bev\u00e6ger sig og ser verden p\u00e5.<\/p>\n<\/div><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"429\" src=\"https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1024x429.png\" alt=\"\" class=\"wp-image-27 size-full\" srcset=\"https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1024x429.png 1024w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-300x126.png 300w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-768x321.png 768w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1536x643.png 1536w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-2048x857.png 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"has-custom-grundfarve-2-color has-text-color has-link-color wp-elements-223ea9ecaa9e83b65679e02d084a7408 wp-block-paragraph\"><em>Det er den eneste sygdom, hvor et organsystem omdannes til noget andet i form af et ekstra skelet.<\/em><\/p>\n<\/blockquote>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile has-custom-grundfarve-2-background-color has-background\"><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"429\" src=\"https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1024x429.png\" alt=\"\" class=\"wp-image-27 size-full\" srcset=\"https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1024x429.png 1024w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-300x126.png 300w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-768x321.png 768w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-1536x643.png 1536w, https:\/\/julieelmquist.dk\/wp-content\/uploads\/2026\/07\/groen-sommerfugl-1-2048x857.png 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\">Udbrud og forkalkninger<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">FOP er det man kalder traumebaseret og ved traumer som operationer, vacciner eller selv en influenza kan sygdommen starte det man kalder et udbrud. Her begynder omr\u00e5det f\u00f8rst at blive varmt og h\u00e6vet, og med tiden begynder der at komme nye omr\u00e5der med kalk.<\/p>\n<\/div><\/div>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"has-custom-grundfarve-2-color has-text-color has-link-color wp-elements-15301a44fb402c9fbea17516c02b76f2 wp-block-paragraph\"><em>Forestil dig en defekt r\u00f8galarm. Den melder om brand, men i stedet for brandstationen, f\u00e5r den fat i politiet<\/em><\/p>\n<\/blockquote>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns has-custom-grundfarve-1-background-color has-background is-layout-flex wp-container-core-columns-is-layout-f56f613f wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Julies muskler omdannes til knogler \u2013 Uhelbredeligt syg med FOP\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/HSdR4pvfRsY?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\">Mini dokumentar om FOP<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Dokumentaren viser de fysiske konsekvenser af FOP og giver et visuelt indblik i de udbrud og forkalkninger, som normalt er usynlige for omverdenen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns has-custom-grundfarve-2-background-color has-background is-layout-flex wp-container-core-columns-is-layout-f56f613f wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\"><strong>Hvordan f\u00f8les FOP?<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">FOP p\u00e5virker langt mere end kroppen. Sygdommen \u00e6ndrer m\u00e5den man bev\u00e6ger sig gennem verden p\u00e5 \u2014 fysisk, socialt og mentalt.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Med tiden kan selv simple bev\u00e6gelser blive sv\u00e6re. Men sygdommen p\u00e5virker ogs\u00e5 selvst\u00e6ndighed, relationer, fremtidsdr\u00f8mme og f\u00f8lelsen af identitet.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Julie&amp;apos;s Story\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/OnK718DNYH8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-f56f613f wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column has-custom-grundfarve-1-background-color has-background is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\">Fakta om FOP<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Skyldes typisk en mutation i genet ACVR1<\/li>\n\n\n\n<li>Rammer cirka \u00e9n ud af 1,5-2 millioner<\/li>\n\n\n\n<li>Der er seks i Danmark, jeg var nummer fire<\/li>\n\n\n\n<li>Kan ikke helbredes i dag<\/li>\n\n\n\n<li>Storet\u00e6er er ofte misdannede fra f\u00f8dslen<\/li>\n\n\n\n<li>Nye knogledannelser kan udl\u00f8ses af b\u00e5de store og sm\u00e5 skader p\u00e5 muskler<\/li>\n\n\n\n<li>Forskere arbejder p\u00e5 behandlinger, der kan bremse sygdommen<\/li>\n<\/ul>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:55px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns has-base-color has-custom-grundfarve-2-background-color has-text-color has-background has-link-color wp-elements-8f59cdcba6e8c7f9bc9bb9f66bbdbd9b is-layout-flex wp-container-core-columns-is-layout-f56f613f wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-contrast-color has-text-color has-link-color wp-elements-56a5d8ac7689f300b3d95a5dd77bd999\">Ofte stillede sp\u00f8rgsm\u00e5l om FOP<\/h2>\n\n\n\n<h3 class=\"wp-block-heading has-contrast-color has-text-color has-link-color wp-elements-2cdb0b58e82b8e89e8f9edf927bc4867\">Hvad er Fibrodysplasia Ossificans Progressiva (FOP)?<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">FOP er en sj\u00e6lden genetisk sygdom, hvor kroppen danner knogler i muskler og bindev\u00e6v<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Kan FOP helbredes?<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Der findes endnu ingen kur mod FOP, men forskere rundt om i hele verden arbejder p\u00e5 forskellige behandlingsformer, der kan bremse sygdommens udvikling<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Hvor sj\u00e6lden er FOP?<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Sygdommen rammer cirka 1 ud af 1,5-2 millioner mennesker<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Er FOP arveligt?<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">I nogle tilf\u00e6lde kan sygdommen v\u00e6re arvelig, men i de fleste tilf\u00e6lde opst\u00e5r den spontant gennem nye mutationer<\/p>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Forestil dig en sygdom, hvor kroppen langsomt bygger et ekstra skelet rundt om sig selv. Hvad er FOP? Fibrodysplasia Ossificans Progressive \u2013 ofte bare kaldet FOP \u2013 er en af verdens sj\u00e6ldneste genetiske sygdomme. Ved FOP bliver muskler, sener og bindev\u00e6v gradvist omdannet til knoglev\u00e6v. Kroppen reparerer sig selv forkert og selv sm\u00e5 skader kan [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-9","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/pages\/9","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=9"}],"version-history":[{"count":5,"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/pages\/9\/revisions"}],"predecessor-version":[{"id":60,"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=\/wp\/v2\/pages\/9\/revisions\/60"}],"wp:attachment":[{"href":"https:\/\/julieelmquist.dk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}